Flying Oliver and his mother home after Oliver's chemo treatment at Children's Hospital
Both Olly and his Mother Shannon are facing terminal cancer diagnosis
Olly has High Risk Multi System Langerhan Cell Histiocytosis. In other words, a rare cancer of the immune system. It does not stage put like "normal " cancers, but if it did, he would be Stage 4. He currently has involvement in his central nervous system, liver, spleen, and bone marrow. He also has Epilepsy, Adrenal insufficiency, and Diabetes Insipidus as a result of the cancer.
I have Stage 4 breast cancer. Its moved beyond my original tumor site to my bones and most recently, they just biopsied some lymph nodes because they are "suspicious."
Olly was first diagnosed in Dec 2011 at age 18mo. He went into remission in August 2014 at age 4. I was diagnosed Nov 2014 at age 37. I went into remission Jan 2016 at age 38. He relapsed March 2016- now considered terminal, he will never be off treatment, but he is now 8 and a half and we treasure every day. I relapsed May 2018 at age 41and am also now considered terminal, I will never be off treatment.
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